Baylie For Brains

Baylie's journey through Chiari Malformation and Psuedotumor Cerebri/LP Shunt

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-----NOW AVAILABLE-----

"SPECIAL EDITION" T-SHIRTS--NOW ON SALE

click here- Check it out here

 

click here for Baylie's NEW Winter T-Shirt

   

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also click here for Baylie's NEW Winter T-Shirt

 

This site has been created to keep our friends and family updated. Baylie was diagnosed in Feb. 2000 with Chiari Malformation (a rare brain abnormality) and in June 2004 with Pseudotumor Cerebri (high intracranial pressure). She has undergone 3 brain surgeries and 8 surgeries on her LP shunt since her diagnosis.

 During this time, Baylie has decided to help find a cure, she started making Beaded Bracelets, then came T-Shirts.

She has already Made over $152,000.00

Baylie’s "Race To a Million Dollars" Currently at $152,000.00.....Help Support Baylie's Race to a Million....Deepest Thanks From Baylie

She is on a Mission now... To raise a Million Dollars to help stop the pain in her friends and herself, she is determined to beat this disease and help ALL else that suffer from it.

What's New?....Click Here

Please Help Baylie reach her goal...

 
 
 
 
 

In case you have not heard, Baylie is making and selling beaded bracelets.

They are glass and plastic beads with at least one blue bead since her middle name is Belewe (she was born on the blue moon).

Some of them have cute sayings on them like

"Wish", "Hope", "Cure", and Chiari",

others have charms and some don't have anything but beads. We are asking for a minimum $5 donation to cover the cost of the bracelets. If you can't afford the $5 just let us know and we will still get you one.

Baylie presenting

 Dr. Frim with a check in the amount of $70,000.00

She is going to continue to sell Bracelets and Candles to raise money for Chiari and Psuedotumor research.

If you are interested in a bracelet, you can order and/or make a donation online or

you can e-mail me at tressieowen@hotmail.com and I will get back with you. 

Thanks for your continued support!

 

BAYLIE'S JOURNAL

Our Chiari Friends: Ann, Caty, Daniel ,   Bronwyn  ,   Cristina  ,

Whitney

SPONSORS

Thank you for making Baylie's efforts possible!

Caring Bridge ---A place to heal, celebrate and share. Caring Bridge is a nonprofit 501(c)(3) organization offering free personalized web sites to those wishing to stay in touch with family and friends during significant life events. Our mission is to bring together a global community of care powered by the love of family and friends in an easy, accessible and private way.

Computer Business Forms---designed and donated our "thank you" business cards.

Dino Bartolomei, MAS---Thanks to Dino and Trey for designing and donating Baylie's "cure Chiari" buttons. Adco Litho Line Inc, 2700 W Roosevelt Rd, Broadview, IL 60155 www.adcolitho.com

Hostway- web host

www.primalscreens.net---Thanks for giving us a great price on all of Baylie's T-Shirts, and

for doing an awesome job...

The Beadery

www.uline.com---  Thank you to Uline for donating envelopes to Baylie for
shipping her merchandise.


LINKS

For Chiari silicone bracelets please visit Whitney's website http://www.chiaribracelets.com/

ASAP Improving the lives of persons affected by syringomyelia, chiari malformation and related disorders while we find a cure. http://www.asap.org

Ronald McDonald House Our home away from home... Ronald McDonald House, 5444 S. Drexel Avenue, Chicago, IL 60615, Tel: (773) 324-kids or (773) 324-5437. http://www.ronaldmcdonaldhouseuc.org

Chicago Comer Children's Hospital Parents from across the country and around the world bring their children to Chicago Comer Children's Hospital for treatment of the most challenging neurological problems. http://www.uchicagokidshospital.org

         
         

CHICAGO AREA RESIDENTS
Bracelets are now available at select Once Upon A Child stores. Available at these Chicagoland locations:

▪ Bolingbrook ▪ Chicago-Northwest ▪ Downers Grove
▪ Naperville ▪ Round Lake Beach ▪ St. Charles
▪ Streamwood ▪ Villa Park ▪ West Dundee
▪ Schererville, Indiana  

To locate a store near you visit: www.chicagolandouac.com

         

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