Baylie For Brains
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Baylie's journey through
Chiari Malformation and
Psuedotumor Cerebri/LP Shunt |
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-----NOW AVAILABLE-----
"SPECIAL EDITION" T-SHIRTS--NOW ON
SALE
click here-
Check it
out here
click here for
Baylie's NEW
Winter T-Shirt
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This site has been created to keep
our friends and family updated. Baylie was diagnosed in Feb. 2000 with
Chiari Malformation (a rare brain abnormality) and in June 2004 with
Pseudotumor Cerebri (high
intracranial pressure). She has undergone 3 brain surgeries and 8
surgeries on her LP shunt since her diagnosis.
During this time, Baylie has decided to help find a cure, she started
making Beaded Bracelets, then came T-Shirts.
She has already
Made over
$152,000.00
She
is on a Mission now... To raise a Million Dollars to help stop the
pain in her friends and herself, she is determined to beat this
disease and help ALL else
that suffer from it.
What's New?....Click Here |
Please Help
Baylie reach her goal...
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In
case you have not heard, Baylie is making and selling beaded
bracelets.
They are glass and plastic beads with at least one blue
bead since her middle name is Belewe (she was born on the
blue moon).
Some of them have cute sayings
on them like
"Wish", "Hope", "Cure",
and Chiari",
others have charms and some
don't have anything but beads. We are asking for a minimum $5 donation
to cover the cost of the bracelets. If you can't afford the $5 just
let us know and we will still get you one.
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Baylie presenting
Dr. Frim with a check in the amount of $70,000.00
She is going to continue to sell Bracelets and Candles to raise money
for
Chiari and
Psuedotumor research.
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If you are
interested in a bracelet, you can order and/or make a donation online
or
you can e-mail me at
tressieowen@hotmail.com and I will get back with you.
Thanks for your
continued support! |
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Our Chiari Friends:
Ann,
Caty,
Daniel ,
Bronwyn ,
Cristina ,
Whitney
SPONSORS
Thank you for making Baylie's efforts possible!
Caring Bridge
---A place to heal, celebrate and share. Caring Bridge is a nonprofit
501(c)(3) organization offering free personalized web sites to those
wishing to stay in touch with family and friends during significant life
events. Our mission is to bring together a global community of care
powered by the love of family and friends in an easy, accessible and
private way.
Computer Business Forms---designed and donated our "thank you"
business cards.
Dino Bartolomei, MAS---Thanks to Dino and Trey for designing and
donating Baylie's "cure Chiari" buttons. Adco Litho Line Inc, 2700 W
Roosevelt Rd, Broadview, IL 60155
www.adcolitho.com
Hostway- web
host
www.primalscreens.net---Thanks
for giving us a great price on all of Baylie's T-Shirts, and
for doing an awesome job...
The Beadery
www.uline.com---
Thank you to Uline for donating envelopes to Baylie for
shipping her merchandise.
LINKS
For
Chiari silicone bracelets please visit Whitney's website
http://www.chiaribracelets.com/
ASAP Improving the lives of persons affected by syringomyelia, chiari malformation and related disorders while we find a cure.
http://www.asap.org
Ronald McDonald House
Our home away from home... Ronald
McDonald House, 5444 S. Drexel Avenue, Chicago, IL 60615, Tel:
(773) 324-kids or (773)
324-5437.
http://www.ronaldmcdonaldhouseuc.org
Chicago Comer Children's Hospital
Parents from across the country and around the world bring their children to Chicago Comer Children's Hospital for treatment of the most challenging neurological problems.
http://www.uchicagokidshospital.org
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CHICAGO AREA RESIDENTS
Bracelets are now available at select
Once Upon A Child
stores. Available at these Chicagoland locations: |
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▪ Bolingbrook |
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Chicago-Northwest |
▪ Downers
Grove |
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▪ Naperville |
▪ Round Lake
Beach |
▪ St.
Charles |
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▪ Streamwood |
▪ Villa Park |
▪ West
Dundee |
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▪
Schererville, Indiana |
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To
locate a store near you visit:
www.chicagolandouac.com |
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2005-2006 BaylieforBrains.com™. All rights reserved.
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